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Welcome to this year's
Virtual Family Connect Summit

10/06/2022

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Hours
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The ADAPT Family Summit is for families, self-advocates, professionals, and anyone interested in the latest information regarding intellectual and development disability services and supports for children and adults. Explore all the topics and speakers for this year’s Summit below.

Our 7th Annual Family Connect Summit will highlight important updates and resources available to children and adults with disabilities. Experts from across NY will be presenting on various topics that can benefit the IDD community.

Join us live on ZOOM!

Plenary Session

🕑 (10:00 am – 10:55 am)

Edward R. Matthews, Chief Executive Officer of ADAPT Community Network (formerly UCP of NYC), has worked in the developmental disabilities field since 1974. He was appointed CEO of UCP of NYC in 1989, and it is now the largest UCP affiliate in the United Sates providing services to more than 20,000 children, adults and their families throughout New York City.

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<span translate="no">Edward R. Matthews</span>

Edward R. Matthews

Edward R. Matthews, Chief Executive Officer of ADAPT Community Network (formerly UCP of NYC), has worked in the developmental disabilities field since 1974.

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1) Advocating At the Iep Meeting- Strategies for Success What Every Parent Needs To Know

🕑 (11:00 am – 11:55 am)

The goal of this workshop is to empower parents and caregiver to be more effective advocates for their children and get better educational outcomes. Attendees will understand why the Federal law is the key and will learn new skills and strategies to better prepare them for their child’s next IEP meeting and working with their child’s school. It is as simple as learning your ABC’s and doing your homework.

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<span translate="no">Christopher Treiber</span>

Christopher Treiber

Christopher Treiber, MSW has been the Associate Executive Director for Children’s Services for the Inter Agency Council for Developmental Disability Agencies for the past 10 years. He provides high level technical expertise on program management and strategic planning for early intervention and special education providers. Chris prepares and presents public testimony and written analyses of proposed regulations and legislation. He meets with legislators and senior government officials regarding policy matters impacting the IDD field.

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2) Introduction to: Medicaid Waiver, Self-Direction, and Independent Housing

🕑 (12:00 am – 12:55 pm)

This session will offer an introduction to Medicaid Waiver benefits through OPWDD, basic components of Self-Direction, and the connection between Self Direction and strong independent housing plans.

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<span translate="no">Donna Maxon<span>

Donna Maxon

NYS Certified Self Direction Broker, Certified Housing Navigator, NYS, Certified PLAN Network Facilitator

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3) Positive approaches to behavior in children and adults

🕑 (1:00 pm – 1:55 pm)

Dr. Avi Avigdor and Michael Boardman will present a framework for understanding behaviors and their functions and discuss strategies designed to prevent challenging behavior and respond to challenging behavior such that it is less likely to occur in the future. They will also discuss what types of behavior support services and counseling services are available to parents, caregivers, and staff. This includes discussion of services provided by Early Intervention, The Committee on Preschool Special Education, Article 28 clinics, Article 16 clinics, and Dayhab/Residential programs.

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<span translate="no">Avi Avigdor</span>

Avi Avigdor

A Licensed Psychologist and Director of Psychology of Adult Programs for ADAPT Community Network

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<span translate="no">Michael Boardman</span>

Michael Boardman

A Board-Certified Behavior Analyst (BCBA) and Licensed Behavior Analyst (LBA) with ADAPT Community Network Education Services

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4) Parent Panel: How to be an Effective Advocate for Your Loved One with a Disability

🕑 (2:00 pm – 2:55 pm)

Parents and guardians are often the best advocates for their children. This workshop will focus on empowering families with the knowledge, skills, and confidence to advocate for their loved one with a disability. The presenters are family members who will give practical information about how to build a network of support to effect change for your family member and others in the I/DD community.

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<span translate="no">Michael Bolton</span>

Michael Bolton

I received a B.S. in Sociology from the University of Hartford in 1974, and entered the IDD field in 1978 working for UCP of NYS providing recreation opportunities in
residences throughout NYC.

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5) Mental Health in Children & Adolescence: How to Support Your Child

🕑 (3:00 pm – 3:55 pm)

The webinar will focus on supporting mental health in children and adolescents. Tips for helping youth cope with their emotions and challenges will be included along with when to seek assistance from professionals.

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<span translate="no">Dr. Erin Rivelis</span>

Dr. Erin Rivelis

Assistant Professor at The Rose F. Kennedy Children's Evaluation & Rehabilitation Center at the Children's Hospital at Montefiore

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By: Sharlita Wilkins

“One of the first things you need to know about me is that I’m a believer in Jesus Christ. I was born in Brooklyn, New York but I moved to Staten Island, and in 1978 I moved back to Brooklyn again. When I was eight years old, I started to read, and once I realized I could read- I read everyday. I don’t think about my disability, even though I’m not perfect. I don’t consider it a disability. I don’t want to put anybody down, we are all beautiful in God’s eyes. I love to create from my heart. Art can be anything that you can think of. It could be anything ! You can create anything. When I first started, I couldn’t draw good but I figured out what I wanted to make and then I started to stick to a theme. I’ve always watched Bob Ross when he comes on TV, and I always wanted to learn to paint like him. I try to copy his technique with my brush, but in my own style. That’s why I draw a lot of waterfalls and nature. I am inspired by anything that is beautiful, like a lake for example. Maybe you want to go to Hawaii and you wish you could go but you can’t, you can go there by painting. You can travel through painting to anywhere you want to go.”

Sponsors

CoPilot Services are the core of what Pilot|RB brings to its clients. From helping employees navigate the healthcare system to working with employers to keep them in compliance, CoPilot aims to meet the needs of clients and their employees with all their risk and benefits needed.

Vonage (Nasdaq: VG), a global cloud communications leader, helps businesses accelerate their digital transformation. Vonage’s Communications Platform is fully programmable and allows for the integration of Video, Voice, Chat, Messaging and Verification into existing products, workflows and systems. Vonage’s fully programmable unified communications and contact center applications are built from the Vonage platform and enable companies to transform how they communicate and operate from the office or anywhere, providing enormous flexibility and ensuring business continuity.

NYSARC Trust Services administers pooled special needs trusts and has helped people with disabilities protect their financial eligibility for benefits since 1972 Our pooled trust programs can help you: • Plan for the future needs of a loved one with a disability • Protect unexpected windfalls of money (inheritance, retroactive benefit payment, settlement award, etc.) • Preserve income and assets for Medicaid planning purposes and long-term care needs For more information, please call (518) 439-8323 or visit www.nysarctrustservices.org.

Partners Health Plan (PHP) is committed to person-centered care planning that provides support to assist our members in accessing the highest quality healthcare and services, promoting good health and wellness, improving quality of life and supporting each member to live the life they choose. PHP’s plan provides care management services and medical coverage to individuals with IDD, eligible for Medicaid and Medicare, in the downstate NY area. Please visit us at www.phpcares.org or call us at 855-747-5483.

CoPilot Services are the core of what Pilot|RB brings to its clients. From helping employees navigate the healthcare system to working with employers to keep them in compliance, CoPilot aims to meet the needs of clients and their employees with all their risk and benefits needed.

Vonage (Nasdaq: VG), a global cloud communications leader, helps businesses accelerate their digital transformation. Vonage’s Communications Platform is fully programmable and allows for the integration of Video, Voice, Chat, Messaging and Verification into existing products, workflows and systems. Vonage’s fully programmable unified communications and contact center applications are built from the Vonage platform and enable companies to transform how they communicate and operate from the office or anywhere, providing enormous flexibility and ensuring business continuity.

NYSARC Trust Services administers pooled special needs trusts and has helped people with disabilities protect their financial eligibility for benefits since 1972 Our pooled trust programs can help you: • Plan for the future needs of a loved one with a disability • Protect unexpected windfalls of money (inheritance, retroactive benefit payment, settlement award, etc.) • Preserve income and assets for Medicaid planning purposes and long-term care needs For more information, please call (518) 439-8323 or visit www.nysarctrustservices.org.

Partners Health Plan (PHP) is committed to person-centered care planning that provides support to assist our members in accessing the highest quality healthcare and services, promoting good health and wellness, improving quality of life and supporting each member to live the life they choose. PHP’s plan provides care management services and medical coverage to individuals with IDD, eligible for Medicaid and Medicare, in the downstate NY area. Please visit us at www.phpcares.org or call us at 855-747-5483.

CoPilot Services are the core of what Pilot|RB brings to its clients. From helping employees navigate the healthcare system to working with employers to keep them in compliance, CoPilot aims to meet the needs of clients and their employees with all their risk and benefits needed.

Vonage (Nasdaq: VG), a global cloud communications leader, helps businesses accelerate their digital transformation. Vonage’s Communications Platform is fully programmable and allows for the integration of Video, Voice, Chat, Messaging and Verification into existing products, workflows and systems. Vonage’s fully programmable unified communications and contact center applications are built from the Vonage platform and enable companies to transform how they communicate and operate from the office or anywhere, providing enormous flexibility and ensuring business continuity.

NYSARC Trust Services administers pooled special needs trusts and has helped people with disabilities protect their financial eligibility for benefits since 1972 Our pooled trust programs can help you: • Plan for the future needs of a loved one with a disability • Protect unexpected windfalls of money (inheritance, retroactive benefit payment, settlement award, etc.) • Preserve income and assets for Medicaid planning purposes and long-term care needs For more information, please call (518) 439-8323 or visit www.nysarctrustservices.org.

Partners Health Plan (PHP) is committed to person-centered care planning that provides support to assist our members in accessing the highest quality healthcare and services, promoting good health and wellness, improving quality of life and supporting each member to live the life they choose. PHP’s plan provides care management services and medical coverage to individuals with IDD, eligible for Medicaid and Medicare, in the downstate NY area. Please visit us at www.phpcares.org or call us at 855-747-5483.

CoPilot Services are the core of what Pilot|RB brings to its clients. From helping employees navigate the healthcare system to working with employers to keep them in compliance, CoPilot aims to meet the needs of clients and their employees with all their risk and benefits needed.

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Edward R. Matthews

Edward R. Matthews, Chief Executive Officer of ADAPT Community Network (formerly UCP of NYC), has worked in the developmental disabilities field since 1974. He was appointed CEO of UCP of NYC in 1989, and it is now the largest UCP affiliate in the United Sates providing services to more than 20,000 children, adults and their families throughout New York City.  He spent 10 years in State Government where he directed the team responsible for the acquisition of all residential and day program sites to implement the deinstitutionalization of Willowbrook. In February 2011, Governor Andrew Cuomo appointed Mr. Matthews, along with a select group of individual leaders, to be a member of the Medicaid Redesign Team, a special taskforce responsible for the overhaul of New York State’s massive Medicaid system.  In addition, he was appointed by OPWDD to serve on the Steering Committee to implement the People First Waiver, a partnership between New York State and the federal government to reconstruct the Medicaid funding system for New York’s citizens with developmental disabilities, to provide them greater choice and access and reduce costs.  He was also appointed to be a member of the OPWDD Provider Association and the OPWDD workgroup tasked with modernizing the fiscal financial platform.  He is the past Chair of the Board of Managers of Care Design NY, one of the designated Care Coordination Organizations in New York State and is a Board Member of Partnerships for Healthcare Solutions, Inc., the parent company of Partners Health Plan.

Christopher Treiber

Christopher Treiber, MSW has been the Associate Executive Director for Children’s Services for the Inter Agency Council for Developmental Disability Agencies for the past 10 years. He provides high level technical expertise on program management and strategic planning for early intervention and special education providers. Chris prepares and presents public testimony and written analyses of proposed regulations and legislation. He meets with legislators and senior government officials regarding policy matters impacting the IDD field. Chris is possessed with knowledge of disability law and special education regulations. Chris has been appointed to various city and state-wide taskforces including the NYS Board of Regents School Reopening and the Early Childhood Blue Ribbon Taskforces. He was most recently appointed to the NYC Commissioner’s Daycare Advisory Council. Prior to his position with the IAC, Chris worked for AHRC New York City for almost 22 years. During that time, he worked as a school social worker at the Brooklyn Blue Feather Early Learning Center for 5 years and as the Director of Advocacy Services for 17 years. Chris is a certified social worker and has a master’s degree in Social Work from Hunter College School of Social Work. 

Donna Maxon

Donna Maxon, NYS Certified Self Direction Broker, Certified Housing Navigator, NYS, Certified PLAN Network Facilitator.

Donna Maxon is the parent of a nonspeaking adult son who has autism. In 1994 when her son, Donald, was diagnosed with autism, she, and her husband, along with seven other families, co-founded the New York Child Learning Institute, a school for children with autism, located in College Point, Queens. Donna has been the parent supervisor of Donald’s Self-Direction program since 2012.

Professionally, Donna’s background is in corporate training and development. But for the past eight years, Donna works primarily as an Independent Self-Direction Broker, and has worked with over 100 people in this role. Within this work, she assists people design, develop, and implement programming using the Self Direction funding stream. She has also developed and presented a curriculum for Broker Training and is very proud of the Brokers she has mentored to do this important work. Donna is also a Certified Housing Navigator, which allows her to work with people and their Circle of Supports, to develop and implement Housing Action Plans, which support independent living in the community. Additionally, Donna works with ArchCare, as the Independent Housing Managing Agent. This project aims to convert unused convents into apartment buildings that offers affordable housing to the public, with some apartments set aside for adults diagnosed with autism. ArchCare currently has one apartment building successfully operating in Staten Island, with a second project in development in Westchester County. Donna describes this work as, “a highlight of my life.

Avi Avigdor

Dr. Avi Avigdor is a Licensed Psychologist and Director of Psychology of Adult Programs for Adapt Community Network. He has over 10 years of experience working in agencies that serve individuals with developmental disabilities. He provides support to Article 16 clinic, residential, and day hab programs throughout the agency.

Michael Boardman

Michael Boardman is a BoardCertified Behavior Analyst (BCBA) and Licensed Behavior Analyst (LBA) with ADAPT Community Network. Michael has over 23 years of experience working with children (birth to 5) with developmental disabilities. Michael started his career working as a special education teacher in a 6:1:2 center-based classroom for students with autism spectrum disorder (ASD). His interest in working with the ASD population led him to the field of Behavior Analysis – a science focused on the application of behavioral principles to the needs of individuals and their families to promote behavior change and improve quality of life. Nowadays, Michael provides behavioral support to ADAPT’s Preschool Programs both in the classroom and remotely with their students’ families.

Michael Bolton

I received a B.S. in Sociology from the University of Hartford in 1974, and entered the IDD field in 1978 working for UCP of NYS providing recreation opportunities in
residences throughout NYC. I went back to school and got a Masters in Therapeutic
Recreation & Developmental Disabilities from LIU in 1981, doing my clinical internship working at the Willowbrook State School on Staten Island.

In 1986 I began working at UCP of NYC, now Adapt Community Network, and became the Director of Recreation Services in 1989, a position I held until retiring in 2013. In 1987, almost 10 years into my career, I became the parent of Justin, now a 34 yr. old young man with several disabilities including intellectual impairment, Epilepsy and other Developmental Disabilities. While I was already dedicated to the IDD community, once Justin was born I became even more determined to make a difference in the lives of those who needed assistance. My son now lives in a residence run by Heartshare
Human Services.

After retiring, I became a member of NYC FAIR’s Executive Committee to continue my commitment assisting individuals and families of the IDD community in their quest to provide the care and services necessary for their loved ones to live a full and
meaningful life.

Dr. Erin Rivelis

Dr. Erin Rivelis holds the position of Assistant Professor at the Rose F. Kennedy Children’s Evaluation and Rehabilitation Center (CERC) at the Children’s Hospital at Montefiore.  She serves as co-director of the Child and Adolescent Unit and Externship Coordinator and specializes in work with children/adolescents with neurodevelopmental disabilities.  She is also an Adjunct Associate Professor of Psychology and Education at Teachers College, Columbia University where she teaches a course in psychoeducational assessment. Dr. Rivelis obtained her undergraduate degree in Psychology from the University of Michigan.  She then went on to receive her Ph.D. in the School Psychology Program at Teachers College, Columbia University.

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Virtual Family Connect Summit