2024 Virtual Family Connect Summit
- Wednesday 10/16/2024
- 10:00AM - 3:30PM
AGenda
Welcome to ADAPT’s 2024 Virtual Family Connect Summit.
Panel discussion on creating the future with a focus on Education, Technology, and Healthcare.
This workshop will provide information and practical skills to optimally support individuals on the autism spectrum, and those with other neurodevelopmental conditions, in medical settings. Participants will be introduced to specific tools that can be used to advocate for oneself, family members or friends, including resources and supports that may be available to improve the medical experience. The workshop will also increase knowledge regarding questions to ask and decision-making steps to ensure necessary medical care is obtained by patients of all abilities.
Speakers:
Paige Siper – Licensed Clinical Psychologist
Jessica Zweifach – Licensed Clinical Psychologist at the Seaver Autism Center for Research and Treatment
The workshop aims to inform parents, paraprofessionals, parent coordinators, and care managers about the services offered to school-age children who are considered eligible for OPWDD. Given the current changes with children’s waiver enrollment, there is a considerable demand for more solutions to Family Support services. In this session, participants will learn how to get these resources even if a child is not enrolled in a care coordination organization. The differences between OPWDD Waiver Support and Fee for Service Support will also be reviewed. Attendees will have enhanced comprehension of how to obtain supplemental support or in-home assistance through fee-for-service Medicaid, managed care, or private insurance. In home support available (OPWDD/FSS COMMUNITY REHABILITATION, RESPITE, HHA, CD-PAP, and Clinical Support) will be reviewed in detail so families can see what services may fit their needs. The different types of organizations offering these services and the requirements for applying will also be covered.
Speaker:
Rachel Plakstis – Vice President of IDD Services at Extended Homecare and co-chair of the Children’s Committee of the Queen’s DD Council
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The goal of the workshop is to educate parents on their rights and how to effectively deal with the challenges of securing an appropriate education for students with learning disabilities. The discussion will include information on how to secure independent evaluations when the school district’s evaluations are inadequate and how a good iep is developed. The workshop will also Include when a family should seek out an attorney and how families from underserved populations may secure assistance.
Speaker:
Adrienne Arkontaky – Founder and owner of the Arkontaky Law Group University
This presentation will help dispel some common myths about working while receiving public benefits, discuss the options to continue Medicaid coverage even if the individual earns too much to receive an SSA cash benefit, and offer resources for benefits advisement services available to better understand how working will impact all public benefits. We will cover basic information about Supplemental Security Income (SSI) Social Security Disability Insurance (SSDI) , Basic Work Incentives that are available by benefit type , Maintaining Medicaid coverage (1619(b), and Medicaid Buy-In for Working People with Disabilities) , Ways to save money while on benefits (ABLE Accounts, and PASS Plans), Certified Benefits Advisement. We will address the longstanding attitudes about working while on public benefits, dispel the most common myths, and discuss why employment is a good idea. We will provide knowledge about various SSA cash benefits (SSI and SSDI), eligibility criteria, and the work incentives available for each benefit type. We will provide information about ways to save money while on public benefits (ABLE Accounts and PASS Plans) . We will provide information on how you can maintain Medicaid coverage even after you lose your SSI cash benefit.
Speaker:
Lisa Brown – Chair of the Board of Directors for the Sibling Leadership Network
2024 Virtual Family Connect Summit Closing.
Speakers
Paige Siper
Supporting Individual On The Autism Spectrum In Medical Settings
(11:00AM - 11:55AM)
Jessica Zweifach
Supporting Individual On The Autism Spectrum In Medical Settings
(11:00AM - 11:55AM)
Rachel Plakstis
How to Supplement In Home Support Outside of the OPWDD Waiver & School Services
(12:00PM - 12:55PM)
Adrienne Arkontaky
Navigating The Special Education System and the Need for Good Evaluations
(1:30PM - 2:30PM)
Lisa Brown
Benefits 101
(2:30PM - 3:30PM)
Sponsors
The Start Here website was created to offer a one-stop shop of helpful information and resources to support parents of children with disabilities. The content on this website is geared specifically towards parents. Information on how to advocate for your child, questions to ask your child’s pediatrician or simple apps that can help families along their journey are some of the selections you can find at Start Here. Please visit the website www.StartHereParents.org, as well as our social platforms on Facebook and Instagram for the latest updates.
INCLUDEnyc (www.includenyc.org) is the leading provider of training and information for young people in NYC with any known or suspected disability from 0-26, their families, and the professionals who support them. Founded in 1983, INCLUDEnyc believes every young person should be fully included in school, in the workforce, in the community – and should have access to resources, services, and supports to succeed.
AsOne is a dynamic Independent Practice Association (IPA) committed to offering primary care, mental health services, substance abuse treatment, care management, and support for social determinants of health. Our unified, family-based approach addresses intergenerational and complex health needs. Rooted in community-based providers, evidence-based care, and a population health perspective, AsOne strives to achieve sustainable, improved health outcomes for children, adults, and families. Our vision is to create an evidence-based healthcare system that operates “as one,” delivering holistic care to all.
The Collaborative for Children and Families (CCF) is a network of providers dedicated to delivering a wide range of services to children and their families. Our goal is to offer these services in a more coordinated and integrated manner, in partnership with other elements of the healthcare system. CCF provides Health Home Care Management, Home and Community Based Services (HCBS), and Children and Family Treatment and Support Services (CFTSS), ensuring comprehensive care for those we serve.
Autism Spectrum News (ASN), published by the nonprofit Mental Health News Education, provides the autism community with a trusted source of evidence-based information and education, including the latest scientific research, clinical treatment best practices, family support, advocacy, and essential community resources. With a half a million annual readers, ASN provides free access to its entire online library of over 1,500 educational articles, written by subject matter experts and autistic adult self-advocates.
At United Cerebral Palsy of Rhode Island, we empower individuals, from children to adults, to achieve independence and full citizenship. We offer comprehensive support, enabling personal development and community integration. Our goal is to help every child, adult, and family in our community thrive and live meaningful, independent lives.
CP of NYS is a broad-based, multi-service organization encompassing 24 Affiliates and 18,000 employees providing services and programs for more than 100,000 individuals with cerebral palsy and developmental disabilities, as well as resources for families.
Since 1972, NYSARC Trust Services has helped thousands of families plan for the future of loved ones with disabilities, preserve their financial eligibility for Medicaid and/or SSI benefits, and protect unexpected windfalls of money. Establishing a first- or third-party pooled supplemental needs trust through NYSARC Trust Services helps provide financial security to those with disabilities and peace of mind to their families and loved ones.
NY Connects is a free of charge program throughout the five Boroughs that connects people with any Disability, any age to services, resources, or it can be based on people’s needs. We can assist with Food Stamps, Housing Applications, Rental Assistance Applications Guardianship Guidance and OPWDD Guidance. Contact us at 844-862-7930
Throughout our 70-year history of serving people with Cerebral Palsy (CP), we’ve acquired the knowledge and skills to support adults and children with a wide range of disabilities, not just CP. UCP’s programs for people with disabilities in Eastern Connecticut are designed to help increase independence at work, in school and at home. Every day, we offer programs for people with disabilities in CT to help them develop employment skills, find accessible housing and access assistive technology.
If you need anything else, please let me know. Thank you for your help on this. You too Christie! Let’s catch up soon. Sheri
The Start Here website was created to offer a one-stop shop of helpful information and resources to support parents of children with disabilities. The content on this website is geared specifically towards parents. Information on how to advocate for your child, questions to ask your child’s pediatrician or simple apps that can help families along their journey are some of the selections you can find at Start Here. Please visit the website www.StartHereParents.org, as well as our social platforms on Facebook and Instagram for the latest updates.
INCLUDEnyc (www.includenyc.org) is the leading provider of training and information for young people in NYC with any known or suspected disability from 0-26, their families, and the professionals who support them. Founded in 1983, INCLUDEnyc believes every young person should be fully included in school, in the workforce, in the community – and should have access to resources, services, and supports to succeed.
AsOne is a dynamic Independent Practice Association (IPA) committed to offering primary care, mental health services, substance abuse treatment, care management, and support for social determinants of health. Our unified, family-based approach addresses intergenerational and complex health needs. Rooted in community-based providers, evidence-based care, and a population health perspective, AsOne strives to achieve sustainable, improved health outcomes for children, adults, and families. Our vision is to create an evidence-based healthcare system that operates “as one,” delivering holistic care to all.
The Collaborative for Children and Families (CCF) is a network of providers dedicated to delivering a wide range of services to children and their families. Our goal is to offer these services in a more coordinated and integrated manner, in partnership with other elements of the healthcare system. CCF provides Health Home Care Management, Home and Community Based Services (HCBS), and Children and Family Treatment and Support Services (CFTSS), ensuring comprehensive care for those we serve.
Autism Spectrum News (ASN), published by the nonprofit Mental Health News Education, provides the autism community with a trusted source of evidence-based information and education, including the latest scientific research, clinical treatment best practices, family support, advocacy, and essential community resources. With a half a million annual readers, ASN provides free access to its entire online library of over 1,500 educational articles, written by subject matter experts and autistic adult self-advocates.
At United Cerebral Palsy of Rhode Island, we empower individuals, from children to adults, to achieve independence and full citizenship. We offer comprehensive support, enabling personal development and community integration. Our goal is to help every child, adult, and family in our community thrive and live meaningful, independent lives.
CP of NYS is a broad-based, multi-service organization encompassing 24 Affiliates and 18,000 employees providing services and programs for more than 100,000 individuals with cerebral palsy and developmental disabilities, as well as resources for families.
Since 1972, NYSARC Trust Services has helped thousands of families plan for the future of loved ones with disabilities, preserve their financial eligibility for Medicaid and/or SSI benefits, and protect unexpected windfalls of money. Establishing a first- or third-party pooled supplemental needs trust through NYSARC Trust Services helps provide financial security to those with disabilities and peace of mind to their families and loved ones.
NY Connects is a free of charge program throughout the five Boroughs that connects people with any Disability, any age to services, resources, or it can be based on people’s needs. We can assist with Food Stamps, Housing Applications, Rental Assistance Applications Guardianship Guidance and OPWDD Guidance. Contact us at 844-862-7930
Throughout our 70-year history of serving people with Cerebral Palsy (CP), we’ve acquired the knowledge and skills to support adults and children with a wide range of disabilities, not just CP. UCP’s programs for people with disabilities in Eastern Connecticut are designed to help increase independence at work, in school and at home. Every day, we offer programs for people with disabilities in CT to help them develop employment skills, find accessible housing and access assistive technology.
If you need anything else, please let me know. Thank you for your help on this. You too Christie! Let’s catch up soon. Sheri
Disclaimer: Workshops are intended for educational and informational purposes only. The views and information expressed by the presenters are their views and does not reflect the position or policy of ADAPT Community Network. Information included in presentations may not be suitable for all families. The content is not to be considered medical, therapeutic, or legal advice and the information provided is not a substitute for a professional opinion. ADAPT strongly suggests that you consult your doctor, social worker, and/or therapist regarding specific questions and for further information. In no event shall ADAPT be liable for any type of loss or damage that could be construed as arising from these presentations.
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